Helpful Links

Whether you need specific or general information regarding Advance Care Planning - you've come to the right place.  Here you'll find helpful links to other sites and sources of information for your needs.  Simply click the on the logos. If you have any suggested links that we should share, please let us know.  Planning takes many forms depending upon your personal situation - we're also included a video from FEMA to assist with planning for emergency situations.

 
 
 
 
 
 
 
 
 
 
 
We are often asked about Physician Orders for Life-Sustaining Treatment or POLST forms.  This website is really the best resource we've found to answer your questions and help you determine and relay your POLST wishes to your Healthcare team.
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.  The "Starter Kits" page is a great source for information available in many languages.

 

 

Medical Advocacy & Planning.  Sara Stephens' goal is to empower and support patients and families as they deal with illness and engage with our health care system. They offer a multidisciplinary team of trained and experienced medical professionals, who provide patient education, care coordination, and facilitate communication -- between you and your medical providers, and among your providers themselves. They serve patients of all ages, and in all aspects of health challenges and care – from surgeries, to chronic illness, to end-of-life planning.

 

 

Information and resources for California residents from the Office of the Attorney General for End of Life Care Planning.

5 videos presented by the California Health Care Foundation.

CCCC is an interdisciplinary partnership of thought-leaders from healthcare systems and organizations, government agencies, consumer organizations, and the general public.

Through advocacy, education, and resource development, they’re working to ensure organizations and communities have the information, resources, and tools to expand palliative care across the continuum of care.

 

Materials available from CCCC:

Finding Your Way: A Guide for End-of-Life Medical Decisions. This 13-page, easy-to-read booklet helps those who are starting the advance care planning process or considering whether to initiate or withdraw life-sustaining treatment when the end of life is near.  Also in Spanish. Available to view online or purchase through CCCC’s online store at CoalitionCCC.org.

         

Mrs. Lee’s Story: Medical Decisions Near the End of Life. This 16-page booklet written in Chinese and English relates the story of 91-year old Mrs. Ming Lee to introduce health issues that concern Chinese elders and their families. It includes basic information on advance care planning and advance directives, pain management and hospice care. Available to view online or purchase through CCCC’s online store at CoalitionCCC.org.

Aging Care is a resource which connects families with Elder Care, Senior Housing & Caregiver Support.  Their Featured Articles present some excellent information for Caregivers.

 

 

 

 

 

 

 

 

 

 

 

Nursing@Georgetownthe online MSN program from the School of Nursing & Health Studies.  A resource to help individuals with terminal conditions navigate and effectively communicate difficult end-of-life decisions to their family and clinicians. This comprehensive guide includes a list of questions patients can ask physicians about end-of-life decisions and a PDF worksheet on values history.

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